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Tracking Behavioural changes........Measuring progress - BSS
2009
BSS Dissemination - A report
Background
The Behavior Surveillance Survey
(BSS), a periodical research exercise undertaken by APAC provides valuable
insights with respect to changing trends in HIV risk behavior among the at risk
populations over a period of time. APAC has been designing its programs and
implementation strategies through inputs drawn from eleven waves of BSS in the
urban localities of Tamil Nadu and six rounds in Pondicherry. The BSS
findingsare critical in monitoring and evaluating the impact of intervention
efforts, enabling the design of better plans to achieve better results. It also
helps to understand the transmission dynamics of the intervention and sets the
agenda for future research requirements.
In this
context, the twelfth and seventh rounds of BSS for the year 2009 were conducted
in Tamil Nadu and Pondicherry respectively. In the state of Tamil Nadu, the
survey was carried out in the same towns as in previous BSS rounds namely
Chennai, Coimbatore, Madurai, Theni, Salem, Vellore, Erode, Nagercoil, Dindigul,
Palani, Trichy and Tuticorin. The survey covered Pondicherry and Karaikal
districts in Pondicherry.
This year, apart from Tamil Nadu
and Pondicherry, APAC has conducted the first wave of BSS in all the Intensive
Intervention Districts (IIDs) of APAC - Kanchipuram, Villupuram, Trichy, Karur,
Kanniyakumari, Tirunelveli and Tuticorin. Another distinct feature of this BSS
is that PLHIV in the 7 IIDs were also included for the study apart from the
regular 13 categories - FSWs, Truckers & helpers, Slum youth, Men &
women factory workers, Men & women migrant workers, IDUs, MSM, Aravanis,
Male patients attending STD clinics and College youth. The BSS findings were
shared with all the stakeholders, media and consultants in the field of HIV
through a Dissemination Seminar held at The Residency Towers in Chennai on
25/11/09.
Key
Proceedings
Release of Monographs
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Release
of Tamil Nadu urban BSS monograph by Health secretary, Government of Tamil
Nadu and first copy received by the Project Director, TNSACS
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Release
of APAC-IID BSS monograph by Honorary secretary, VHS and first copy received
by the Project Director, APAC
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Release
of Pondichery monograph by the Project Director, TNSACS and first copy
received by Dr. Lakshmi Bai, Project Director of TAI.
Dignitaries’ address
Welcome Address
Dr. Bimal Charles,
the Project Director of APAC welcomed the gathering and gave a brief
introduction about the context and purpose of the BSS survey.
Inaugural address
Dr. E.S.
Krishnamoorthy, the Honorary Secretary of VHS addressed the audience with a
positive note on the gains of lessons learnt during the survey. The findings
proved valuable in identifying the need to expand existing strategies and
analysing the implications for future action. He emphasised that the third phase
was the most dynamic phase of APAC and mentioned the 5 As
Key note address
Dr. S. Vijayakumar,
Special Secretary & Project Director of TNSACS delivered the key note
address. He pointed at the favourable political will in the state which was
supportive to implementing comprehensive HIV programs that addressed every gap.
The state was pioneering cost effective programs that were replicable models in
similar contexts. Enhancing treatment seeking behavior was an important
challenge that demanded considerable attention. It is crucial to translate
learnings into action in order to achieve the target of ‘no new infection in
2012’.
Presidential address
Mr. V.K. Subburaj,
the Health Secretary, Government of Tamil Nadu highlighted the magnitude of the
efforts required to achieve zero prevalence. He welcomed the fact that the
knowledge levels with respect to STI, HIV/AIDS awareness were high among the
population groups surveyed in the BSS, but expressed concern about low levels of
awareness about the same, among college students. His comments about major
findings indicated the areas that require action
Presentation of key findings
Mr.
Rajendran, Program Manager - Research presented the major findings of the BSS
conducted in urban Tamil Nadu, IIDs and Pondicherry. The highlights are
summarised below.
I - Tamil Nadu Urban BSS - Twelfth wave, IID -
Baseline BSS & Pondicherry BSS - Seventh wave
Objective
To obtain repeated measures on specified indicators in Tamil Nadu and
Pondicherry.
Samples
The total number of samples was 15100, 7200 and 1900 in the urban localities of
Tamil Nadu, IIDs and Pondicherry respectively.
Methodology
Interviews, Data collection through questionnaires, In-depth interviews, Focus
Group Discussions and Mystery client observations.
Key Findings
|
Indicators |
Findings - Tamil Nadu urban |
Findings - Pondicherry |
|
Knowledge indicators |
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Knowledge on at least two
correct methods of preventing STI and HIV was close to universal among
all population groups except among FFW and FMW.
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Knowledge levels of STI
are showing a declining trend in this wave.
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Misconception-free
knowledge shows a declining trend among FSW, TH, IDU and Aravanis. But
it has increased for MSM.
|
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In Pondicherry, knowledge on two modes of
HIV prevention remains universal among female sex workers and
truckers. However, it has shown a marginal decline in the case of MSM.
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The knowledge without misconception has
increased across all the categories in this wave, except for truckers
and helpers.
|
|
Drug injecting behavior |
Use of pre-squirted needles has increased
considerably from 10% in 2006 to 26.1% |
|
|
Sexual behavior |
-
Increase in involvement with non-regular
partners, especially among TH, MSM, MFW and MMW.
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Condom usage practice has not
correspondingly increased for reported increase in sexual activities.
|
|
Voluntary condom procurement |
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Except
for TH, the practice of voluntary condom procurement has shown a
decline in the case of FSW, MSM and Aravanis.
-
Among male populations such as MYS,
MFW, MMW and IDU, procurement of condoms is still low with over two
third of the surveyed populations who do not obtain condoms by
themselves.
-
Medical
shops, petty shops and NGO peers are the main sources of condoms and
amongst truckers, petrol bunks are also common places for procuring
condoms.
|
|
Treatment seeking behavior |
-
The incidence of STI remains very low
across the categories.
-
The treatment taking behavior from a
qualified health practitioner continued to be very high with a
majority approaching a government STD clinic for the treatment.
|
|
HIV testing |
-
Test
taking behavior is observed to be high among FSW and MSM.
-
HIV testing practices
remains low among factory workers, migrant workers and MYS.
-
A
majority of the respondents had taken the test within the past one
year.
|
|
Stigma and discrimination |
-
In Tamil
Nadu urban, it is observed that the stigma and discrimination
associated with HIV positive people have increased
markedly across the categories.
-
In Pondicherry, though the stigma values have gone up, the number of
respondents perceiving that and the attitude that HIV positive persons
must be isolated has decreased.
|
|
Exposure to interventions |
-
Trends in exposure to intervention are
high among FSW, MSM and Aravani Pengal.
-
Among factory workers, especially
FFW, migrant workers and students, exposure to both individual and
group interventions is very low.
-
Interventions
are seen to have a significant impact on HIV testing behavior and
awareness of ICTC
|
Implications
-
Misconceptions are still
prevalent among all the groups and intervention efforts needs to focus on
this direction
-
The
importance of condom usage with regular partners needs to be given emphasis
-
The categories comprising the
general population (MYS, migrants and factory workers) have low exposures to
intervention.
II APAC- IID - Baseline PLHA Survey
Objectives
-
To assess knowledge level on
transmission and prevention of HIV/AIDS and their adherence to safe sex
practices
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To understand the extent of
partner testing and disclosure status.
-
To understand the level of stigma
and discrimination in terms of self stigma and public attitude.
Samples
400 PLHIV from seven IIDs were recruited for the survey
Key Findings
|
Indicators |
Findings |
|
Knowledge of CD4 count |
A majority of the samples were aware about
their CD4 count, the maximum percentage being 93% among males in the
general population and the minimum being 83% among females in the core
groups. |
|
Modes of HIV transmission |
A considerable section of the survey
population, about 89% of the general population and 83% of the core groups
had knowledge about any two correct modes of transmission without
misconception. |
|
Frequency of condom usage |
-
It can
be observed that the percentage of condom use with regular partners is
the least in both the sexes among the general population and the core
groups, the highest being 87.9% among males in the general population
and the least being 74.4% among females in the core groups.
-
Comparatively, the percentage of condom
use is higher in females than in males, both among the general
population and the core groups. While a 100% condom usage is reported
with non-paying non-regular partners among females in the core groups,
it is only 78.6% among their male counterparts.
|
|
Condom usage among discordant/concordant
couples |
-
The percentage of condom use is lesser
with regular partners (84%) than with non-regular partners (100%)
among both concordant and discordant couples in the general
population.
-
The core
groups also indicate a low percentage (77%) of condom use with regular
partners and consistent condom usage (100%) with regular commercial
partners.
-
Among concordant couples in the
core groups, the usage is further low (60%) with regular partners than
the discordant couples who record 87% usage.
|
|
Stigma and discrimination |
-
Three
fourth of the respondents have registered high scores for stigma and
discrimination than the mean value, with the core groups reporting
more stigma (67%) than the general population (59%).
-
Stigma related to Public attitude
and self stigma was reported more than stigma related to personalized
stigma and self image.
-
Core group members (46%) possessed more
self stigma than respondents in the general population (38%).
-
About 90% of the general population
members expressed loss of job due to HIV status.
-
More than 75% of the respondents
from both the general population and the core groups agreed that they
were looked upon as outcasts by the general public.
-
About 8% and 7% of members from the
general population and the core groups respectively agreed that staff
at the workplace made their status public.
|
|
Trigger for HIV test |
-
About 43% of females from the general
population confided that they went for testing only after their spouse’s
status was revealed.
-
A
considerable section of the respondents, both from the general
population (67%) and the core groups (57%) were motivated for HIV
testing on doctor’s advice.
|
|
Disclosure status |
-
The percentage of core group members who
had disclosed their status to their regular partners (77%) and others
was far less than members in the general population (92%).
-
A
negligible percentage (1%) of the respondents from the general
population had disclosed their status to employers while none of the
core group members had done so.
-
Fear of
rejection by friends/peers was the main reason (91%) why respondents
hesitated to disclose their status. Fear of termination from job
(79.5%) and fear of family members facing discrimination (88.5%) also
ranked high.
|
|
Exposure to interventions |
-
Nearly all the respondents from the
general population (98%) and all the core group members (100%) had
availed free medical services
-
Most of
them from the general population (90%) and 97% of the core group
members had been contacted by peer educators.
|
|
Services availed |
-
ICTC
services were the most availed, indicated by 90% and 93% of the
general population members and core group members respectively.
-
DICs
were least accessed (25.6%) of the general population respondents
whereas Community Care Centers were least accessed (21.4%) by the core
group members.
|
|
ART adherence |
Overall, more than 95% of ART adherence was
reported by the respondents. |
|
Quality of Life |
-
This indicator recorded the least score
for psychological well being (43.7%) and the greatest score for
environmental well being was only 60.3%.
-
Only 36.3% of those who were living alone
reported psychological well being compared to 46.4% of those with
partners or family members.
|
Implications
-
Knowledge on modes of HIV was
nearly universal except for vertical transmissions which were correctly
reported by 80% of the respondents. Knowledge without misconception among
PLHIVs was also high.
-
Condom usage practice is
reportedly low among MSMs.
-
About 17% of discordant couples
from the core groups reported inconsistent condom usage with regular and non
paying partners.
-
Disclosure status is limited to
partners and immediate family members (less than one third of the parents
and siblings knew respondents’ status).
-
Nearly one fourth of the MSM
have not disclosed their positive status to regular partners.
-
Three fourth of the PLHIV
registered high level stigma scores. Among the general population, stigma is
driven by sense of livelihood, security and fear of social acceptance.
-
MSMs’ condom usage with
regular partners and commercial partners is an area of concern. Similarly
consistent condom use among discordant partners with all types of partners
requires further emphasi
-
Reduction of stigma that stems from factors
such as job insecurity, social isolation and self blaming require attention.
Queries and discussions
The following queries/comments were raised by a few
among the audience during the discussion hour. The corresponding discussions are
also presented.
-
A question on the common
misconceptions that prevailed among the respondents had this clarification -
fear of transmission through sharingtoilets and vessels, musquito bites.
Some of them even believed that the smell of a person or other physical
characteristics can indicate their HIV status.
-
One among the audience
commented that condom demonstration through several steps instils fear among
prospective users about their ability to follow all the steps correctly. It
was suggested to make it simple.
-
Dr. Desikachari stressed on the
need for a focused approach to comprehensively address the concerns of PLHA.
-
Dr. Beena Thomas pointed out
that the aspect of sexual violence and relevant indicators were missed out
in the survey.
The Project Director of APAC provided some key
inputs which set the pace for the future course of action
-
Knowledge without
misconceptions is a challenge.
-
There is a need for effective
communication strategies and the efforts must involve testing of messages
with the community, better capacity building of HCPs and field workers.
-
Reduced number of interventions
has led to increased sex among truckers with paid partners, indicating the
relevance of BSS in tracking these changes.
-
Strengthening the FSW
intervention will effect behavior change among other groups.
-
Discordant couples reporting
inconsistent condom usage is an area of concern.
-
Counseling services need to be
strengthened in order to effect reduced self stigm
The Project Director of TANSACS
suggested that the triangulation studies and BSS data should be brought
together to design an effective action plan. He pointed out that data on ART
adherence indicates its strength which could be utilised to address gaps in
positive prevention. The reason for low levels of HIV/AIDS among college
students was stated as inadequate reach of relevant messages to new entrants
in the sex trade
Concluding
remark
The pioneering
efforts of APAC were showcased, inspiring a renewed sense of commitment
among HIV/AIDS partners towards the cause.
The dissemination set the
direction not only for APAC but for all the stakeholders with respect to
the future course of action.
The strengths and gaps in the
intervention efforts could be collectively identified thus enabling the
design of corrective measures and better strategies.
Valuable insights could be
gained due to collective thinking by the eminent audience of field experts
and consultants.

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