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Tracking Behavioural changes........Measuring progress - BSS 2009
BSS Dissemination - A report

Background

The Behavior Surveillance Survey (BSS), a periodical research exercise undertaken by APAC provides valuable insights with respect to changing trends in HIV risk behavior among the at risk populations over a period of time. APAC has been designing its programs and implementation strategies through inputs drawn from eleven waves of BSS in the urban localities of Tamil Nadu and six rounds in Pondicherry. The BSS findingsare critical in monitoring and evaluating the impact of intervention efforts, enabling the design of better plans to achieve better results. It also helps to understand the transmission dynamics of the intervention and sets the agenda for future research requirements.

In this context, the twelfth and seventh rounds of BSS for the year 2009 were conducted in Tamil Nadu and Pondicherry respectively. In the state of Tamil Nadu, the survey was carried out in the same towns as in previous BSS rounds namely Chennai, Coimbatore, Madurai, Theni, Salem, Vellore, Erode, Nagercoil, Dindigul, Palani, Trichy and Tuticorin. The survey covered Pondicherry and Karaikal districts in Pondicherry.

This year, apart from Tamil Nadu and Pondicherry, APAC has conducted the first wave of BSS in all the Intensive Intervention Districts (IIDs) of APAC - Kanchipuram, Villupuram, Trichy, Karur, Kanniyakumari, Tirunelveli and Tuticorin. Another distinct feature of this BSS is that PLHIV in the 7 IIDs were also included for the study apart from the regular 13 categories - FSWs, Truckers & helpers, Slum youth, Men & women factory workers, Men & women migrant workers, IDUs, MSM, Aravanis, Male patients attending STD clinics and College youth. The BSS findings were shared with all the stakeholders, media and consultants in the field of HIV through a Dissemination Seminar held at The Residency Towers in Chennai on 25/11/09.

Key Proceedings

Release of Monographs

  • Release of Tamil Nadu urban BSS monograph by Health secretary, Government of Tamil Nadu and first copy received by the Project Director, TNSACS

  • Release of APAC-IID BSS monograph by Honorary secretary, VHS and first copy received by the Project Director, APAC

  • Release of Pondichery monograph by the Project Director, TNSACS and first copy received by Dr. Lakshmi Bai, Project Director of TAI.

Dignitaries’ address

Welcome Address

Dr. Bimal Charles, the Project Director of APAC welcomed the gathering and gave a brief introduction about the context and purpose of the BSS survey.

Inaugural address

Dr. E.S. Krishnamoorthy, the Honorary Secretary of VHS addressed the audience with a positive note on the gains of lessons learnt during the survey. The findings proved valuable in identifying the need to expand existing strategies and analysing the implications for future action. He emphasised that the third phase was the most dynamic phase of APAC and mentioned the 5 As

Key note address

Dr. S. Vijayakumar, Special Secretary & Project Director of TNSACS delivered the key note address. He pointed at the favourable political will in the state which was supportive to implementing comprehensive HIV programs that addressed every gap. The state was pioneering cost effective programs that were replicable models in similar contexts. Enhancing treatment seeking behavior was an important challenge that demanded considerable attention. It is crucial to translate learnings into action in order to achieve the target of ‘no new infection in 2012’.

Presidential address

Mr. V.K. Subburaj, the Health Secretary, Government of Tamil Nadu highlighted the magnitude of the efforts required to achieve zero prevalence. He welcomed the fact that the knowledge levels with respect to STI, HIV/AIDS awareness were high among the population groups surveyed in the BSS, but expressed concern about low levels of awareness about the same, among college students. His comments about major findings indicated the areas that require action

Presentation of key findings

Mr. Rajendran, Program Manager - Research presented the major findings of the BSS conducted in urban Tamil Nadu, IIDs and Pondicherry. The highlights are summarised below.

I - Tamil Nadu Urban BSS - Twelfth wave, IID - Baseline BSS & Pondicherry BSS - Seventh wave

Objective

To obtain repeated measures on specified indicators in Tamil Nadu and Pondicherry.

Samples

The total number of samples was 15100, 7200 and 1900 in the urban localities of Tamil Nadu, IIDs and Pondicherry respectively.

Methodology

Interviews, Data collection through questionnaires, In-depth interviews, Focus Group Discussions and Mystery client observations.

Key Findings

Indicators

Findings - Tamil Nadu urban

Findings - Pondicherry

Knowledge indicators

  • Knowledge on at least two correct methods of preventing STI and HIV was close to universal among all population groups except among FFW and FMW.

  • Knowledge levels of STI are showing a declining trend in this wave.

  • Misconception-free knowledge shows a declining trend among FSW, TH, IDU and Aravanis. But it has increased for MSM.

  • In Pondicherry, knowledge on two modes of HIV prevention remains universal among female sex workers and truckers. However, it has shown a marginal decline in the case of MSM.

  • The knowledge without misconception has increased across all the categories in this wave, except for truckers and helpers.

Drug injecting behavior

Use of pre-squirted needles has increased considerably from 10% in 2006 to 26.1%

Sexual behavior

  • Increase in involvement with non-regular partners, especially among TH, MSM, MFW and MMW.

  • Condom usage practice has not correspondingly increased for reported increase in sexual activities.

Voluntary condom procurement

  • Except for TH, the practice of voluntary condom procurement has shown a decline in the case of FSW, MSM and Aravanis.

  • Among male populations such as MYS, MFW, MMW and IDU, procurement of condoms is still low with over two third of the surveyed populations who do not obtain condoms by themselves.

  • Medical shops, petty shops and NGO peers are the main sources of condoms and amongst truckers, petrol bunks are also common places for procuring condoms.

Treatment seeking behavior

  • The incidence of STI remains very low across the categories.

  • The treatment taking behavior from a qualified health practitioner continued to be very high with a majority approaching a government STD clinic for the treatment.

HIV testing

  • Test taking behavior is observed to be high among FSW and MSM.

  • HIV testing practices remains low among factory workers, migrant workers and MYS.

  • A majority of the respondents had taken the test within the past one year.

Stigma and discrimination

  • In Tamil Nadu urban, it is observed that the stigma and discrimination associated with   HIV positive people have increased markedly across the categories.

  • In Pondicherry, though the stigma values have gone up, the number of respondents perceiving that and the attitude that HIV positive persons must be isolated has decreased.

Exposure to interventions

  • Trends in exposure to intervention are high among FSW, MSM and Aravani Pengal.

  • Among factory workers, especially FFW, migrant workers and students, exposure to both individual and group interventions is very low.

  • Interventions are seen to have a significant impact on HIV testing behavior and awareness of ICTC

Implications

  • Misconceptions are still prevalent among all the groups and intervention efforts needs to focus on this direction

  • The importance of condom usage with regular partners needs to be given emphasis

  • The categories comprising the general population (MYS, migrants and factory workers) have low exposures to intervention.

II APAC- IID - Baseline PLHA Survey

Objectives

  • To assess knowledge level on transmission and prevention of HIV/AIDS and their adherence to safe sex practices

  • To understand the extent of partner testing and disclosure status.

  • To understand the level of stigma and discrimination in terms of self stigma and public attitude.

Samples

400 PLHIV from seven IIDs were recruited for the survey

Key Findings

Indicators

Findings

Knowledge of CD4 count

A majority of the samples were aware about their CD4 count, the maximum percentage being 93% among males in the general population and the minimum being 83% among females in the core groups.

Modes of HIV transmission

A considerable section of the survey population, about 89% of the general population and 83% of the core groups had knowledge about any two correct modes of transmission without misconception.

Frequency of condom usage

  • It can be observed that the percentage of condom use with regular partners is the least in both the sexes among the general population and the core groups, the highest being 87.9% among males in the general population and the least being 74.4% among females in the core groups.

  • Comparatively, the percentage of condom use is higher in females than in males, both among the general population and the core groups. While a 100% condom usage is reported with non-paying non-regular partners among females in the core groups, it is only 78.6% among their male counterparts.

Condom usage among discordant/concordant couples

  • The percentage of condom use is lesser with regular partners (84%) than with non-regular partners (100%) among both concordant and discordant couples in the general population.

  • The core groups also indicate a low percentage (77%) of condom use with regular partners and consistent condom usage (100%) with regular commercial partners.

  •  Among concordant couples in the core groups, the usage is further low (60%) with regular partners than the discordant couples who record 87% usage.

Stigma and discrimination

  • Three fourth of the respondents have registered high scores for stigma and discrimination than the mean value, with the core groups reporting more stigma (67%) than the general population (59%).

  •  Stigma related to Public attitude and self stigma was reported more than stigma related to personalized stigma and self image.

  • Core group members (46%) possessed more self stigma than respondents in the general population (38%).

  •  About 90% of the general population members expressed loss of job due to HIV status.

  •  More than 75% of the respondents from both the general population and the core groups agreed that they were looked upon as outcasts by the general public.

  • About 8% and 7% of members from the general population and the core groups respectively agreed that staff at the workplace made their status public.

Trigger for HIV test

  • About 43% of females from the general population confided that they went for testing only after their spouse’s status was revealed.

  • A considerable section of the respondents, both from the general population (67%) and the core groups (57%) were motivated for HIV testing on doctor’s advice.

Disclosure status

  • The percentage of core group members who had disclosed their status to their regular partners (77%) and others was far less than members in the general population (92%).

  •   A negligible percentage (1%) of the respondents from the general population had disclosed their status to employers while none of the core group members had done so.

  • Fear of rejection by friends/peers was the main reason (91%) why respondents hesitated to disclose their status. Fear of termination from job (79.5%) and fear of family members facing discrimination (88.5%) also ranked high.

Exposure to interventions

  • Nearly all the respondents from the general population (98%) and all the core group members (100%) had availed free medical services

  • Most of them from the general population (90%) and 97% of the core group members had been contacted by peer educators.

Services availed

  • ICTC services were the most availed, indicated by 90% and 93% of the general population members and core group members respectively.

  •  DICs were least accessed (25.6%) of the general population respondents whereas Community Care Centers were least accessed (21.4%) by the core group members.

ART adherence

Overall, more than 95% of ART adherence was reported by the respondents.

Quality of Life

  • This indicator recorded the least score for psychological well being (43.7%) and the greatest score for environmental well being was only 60.3%.

  • Only 36.3% of those who were living alone reported psychological well being compared to 46.4% of those with partners or family members.

Implications

  • Knowledge on modes of HIV was nearly universal except for vertical transmissions which were correctly reported by 80% of the respondents. Knowledge without misconception among PLHIVs was also high.

  • Condom usage practice is reportedly low among MSMs.

  • About 17% of discordant couples from the core groups reported inconsistent condom usage with regular and non paying partners.

  • Disclosure status is limited to partners and immediate family members (less than one third of the parents and siblings knew respondents’ status).

  • Nearly one fourth of the MSM have not disclosed their positive status to regular partners.

  • Three fourth of the PLHIV registered high level stigma scores. Among the general population, stigma is driven by sense of livelihood, security and fear of social acceptance.

  • MSMs’ condom usage with regular partners and commercial partners is an area of concern. Similarly consistent condom use among discordant partners with all types of partners requires further emphasi

  • Reduction of stigma that stems from factors such as job insecurity, social isolation and self blaming require attention.

Queries and discussions

The following queries/comments were raised by a few among the audience during the discussion hour. The corresponding discussions are also presented.

  • A question on the common misconceptions that prevailed among the respondents had this clarification - fear of transmission through sharingtoilets and vessels, musquito bites. Some of them even believed that the smell of a person or other physical characteristics can indicate their HIV status.

  • One among the audience commented that condom demonstration through several steps instils fear among prospective users about their ability to follow all the steps correctly. It was suggested to make it simple.

  • Dr. Desikachari stressed on the need for a focused approach to comprehensively address the concerns of PLHA.

  • Dr. Beena Thomas pointed out that the aspect of sexual violence and relevant indicators were missed out in the survey.

The Project Director of APAC provided some key inputs which set the pace for the future course of action

  • Knowledge without misconceptions is a challenge.

  • There is a need for effective communication strategies and the efforts must involve testing of messages with the community, better capacity building of HCPs and field workers.

  • Reduced number of interventions has led to increased sex among truckers with paid partners, indicating the relevance of BSS in tracking these changes.

  • Strengthening the FSW intervention will effect behavior change among other groups.

  • Discordant couples reporting inconsistent condom usage is an area of concern.

  • Counseling services need to be strengthened in order to effect reduced self stigm

The Project Director of TANSACS suggested that the triangulation studies and BSS data should be brought together to design an effective action plan. He pointed out that data on ART adherence indicates its strength which could be utilised to address gaps in positive prevention. The reason for low levels of HIV/AIDS among college students was stated as inadequate reach of relevant messages to new entrants in the sex trade

Concluding remark

  • The pioneering efforts of APAC were showcased, inspiring a renewed sense of commitment among HIV/AIDS partners towards the cause.

  • The dissemination set the direction not only for APAC but for all the stakeholders with respect to the future course of action.

  • The strengths and gaps in the intervention efforts could be collectively identified thus enabling the design of corrective measures and better strategies.

  • Valuable insights could be gained due to collective thinking by the eminent audience of field experts and consultants.